Apr 20, 2011

My newest nephew

Little did I know when I was taking these pictures that this sweet little baby boy had a disease that I had never even heard of before.  Last Thursday evening (not yet a week ago) my brother and sister-in-law's pediatrician knocked on their door late in the evening.  He delivered the devastating news that their newborn had tested positive for Cystic Fibrosis.  He had an appointment for them up at Primary Children's Hospital the next day.  Life will never be the same for them anymore.  It is crazy that life can change in a moment like that.  To stay updated on their journey you can follow their blog that my sister Cori set up for them.  It is called taylorpack.blogspot.com
 The Doctors wanted to test all of Shawn and Jill's other children.  McKenna their 2 1/2 year old tested as a maybe on her sweat test.  She will have DNA testing this week to either confirm or deny that she has CF.  We are praying that she does not have the disease.


FOREVER YOUNGblood said...

They are SO beautiful. My mom told me the other day. They will be in my prayers.

The Ridgeways said...

I am so sorry Laura. What devastating news, what a great pediatrician to make a house call.

Cori Henderson said...

I sure hope Mckenna doesn't have it. I'm dying for them to get the further testing done so we can know for sure!!!

Lisa said...

Your images are gorgeous Laura!
Sending out prayers to their family and please (although different scnearios) if she would like to talk to anyone with regards to what to expect, I would be more than happy to chat.